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Upcoming Events & News:
Newsletter

Sign up to receive our electronic newsletters by emailing us at cnyasa@yahoo.com. Stay informed about fun family activities and events, workshops and resources as we learn about them. Also, join our Facebook pages, CNY ASA and CNY ASA Spectrum Support to stay updated and informed.

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iCan Shine Bike program

News coverage of the iCan Shine Bike program: News Channel 9 video

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Autism Awareness Month 2016

Autism Awareness Month 2016 was a special opportunity to promote awareness and educate the public about autism and its related issues in our community. While Autism Awareness Month has been recognized since the 1970's, and much progress has been made, there is so much more to be done to promote the 2016 Autism Society's theme of "Building Autism Friendly Communities: One Step at a Time." While the month may be over, let's all continue to strive to go beyond simply promoting awareness to encouraging acceptance, inclusion in our communities, and a true appreciation for individuals' unique talents and gifts, and heighten the public's understanding of the valuable contributions of individuals with autism through full community participation; learning, working, playing, and living as independently as possible.

We thank everyone who helped make our 11th annual "one piece at a time" Autism Awareness Walk on April 16 a success...we had our biggest attendance to date, and what a wonderful show of support from the community! Many, many thanks to the walkers, supporters, volunteers, and vendors for their invaluable roles in ensuring the success of this event! We would like to extend a special thank you to Newschannel 9's Beth Cefalu for emceeing at the Walk. We were pleased to recognize Halle Cerio, who announced the start of the Walk. Halle is a senior at Charles W. Baker High School, and enjoys martial arts and participating in the Red Cross Club. Halle shared, "My inspiration to raise money for CNY ASA was that I myself am autistic. I decided to raise money in hopes of giving kids like me the opportunity to achieve their goals and reach their full potential." Tecumseh Elementary's Learning Pad served as our Walk Marshals and cut the starting ribbon, and was recognized for raising over $1,000 to benefit CNY ASA at its Lemonade Stand on April 1. In addition, we thank Pepsi and Wegmans for their generous donations. Like our Facebook page and view the wonderful photos taken that day!

We also thank the following supporters of CNY ASA and our Autism Awareness Month efforts, including the Carrabba's Cares Program, Fayetteville's UNO Pizzeria & Grill, Independent Stylist Trish Flynn from stella & dot, Witty Wicks Candles, John's Auto Care, comedian Gary Menke, the employees of Fairmount's Empower Federal Credit Union, and the employees from BNY Mellon. Many, many thanks!

As one of over 100 affiliates across the U.S., we will continue to strive to be a resource for those with autism, their families, caregivers, friends, and loved ones, and a catalyst for change in the areas of advocacy and programs and services.

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Autism, Adolescents, Young Adulthood...Oh My!
  • When: Thursday, June 9, 2016
  • Time: 9:00 a.m.-3:30 p.m. (registration begins at 8:30 a.m.)
  • Where: Barbagallo's, 6344 East Malloy Rd., East Syracuse, NY 13057
  • Presented By: Chantal Sicile-Kira

Morning Session:
Adolescents on the Autism Spectrum:
Adolescence is a time of positive growth as well as challenges for everyone, neurotypical or not, as a person transitions from being a child to a young adult. To become as independent in adulthood as possible, teenagers of all different ability levels must learn self-care, appropriate behaviors, modesty and sexuality. Areas to be covered include explaining about puberty and changing bodies, hygiene and self-care and how to problem-solve difficulties in teaching self-care routines, the importance of modesty, and common adolescent concerns such as masturbation. For safety reasons and in preparation for adulthood, all teenagers need to learn about relationship boundaries, and sexuality. Ideas for preventing bullying and abuse will be discussed.

Afernoon Sessions:
Autism Life Skills: Transitioning Teenagers to Adulthood:
The transition to adulthood is a challenge, not only to the teen on the spectrum, but to the parents and educators as well. Hard-won wisdom and practical tips on how parents and professionals can prepare their students of all ability levels - and themselves - for adulthood. Focusing on life skills needed as an adult working and living with autism (and how to teach them), will be addressed. Preparing for employment, college, and long-term living options based on a teenager's ability and interest, as well as networking for resources will be discussed.

About our Presenter:
Chantal Sicile-Kira is an award-winning author, speaker, consultant, parent and leader in the field of autism, adolescence and transition to adulthood, with over 25 years of experience as a parent and professional. Known her for her practical advice, her books are: Autism Spectrum Disorder, Adolescents on the Autism Spectrum, Autism Life Skills, What is Autism, and A Full Life with Autism (co-authored with her son, Jeremy, now 26). Her first practical experience with autism was teaching self-help and community living skills to severely developmentally disabled and autistic adolescents at Fairview State Hospital in preparation for their de-institutionalization.

When told to institutionalize her son years ago, Chantal began to advocate and write books to help others. Chantal’s son, Jeremy, graduated from high school with a full academic diploma and functional life skills at age 21, despite being nonverbal (and mom having been told to institutionalize him). Now 27, Jeremy lives in supported living with 24 hour supports, continues to learn independence skills and is focusing on earning money as a painter.

Chantal has served on various non-profit and advisory boards, as well as on the California Senate Select Committee on Autism & Related Disorders, and was appointed to serveas Co-Chair, South Counties Autism Regional Taskforce. For more information, go to www.autismcollege.com.

Registration Fee:
Person w/ ASD, Parent, Family Member & Caregiver - $20
Professional - $40
Register here

Event Flyer

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Inclusive Summer Camp Program
For Children with Autism
  

Applications still open for East Area YMCA ages 5-6 years only. All others are full.

CNY ASA’s collaboration with the East Area and North Area YMCA provides an Inclusive Summer Camp Recreational Program for children with a diagnosis of Autism Spectrum Disorder.

This is a 6 week summer camp recreational program. Special Education support staff will be provided by CNY ASA.

The camps will run from July 5, 2016 - August 12, 2016

East Area YMCA @ SACC Room in Fayetteville, NY
9:00am-3:00pm

Children must between the ages of
5-8 years old on July 1, 2016

North Area YMCA @ Roxboro Elementary School in Mattydale, NY
9:00am-1:00pm

Children must be between the ages of
5-10 years old on July 1, 2016

Space is limited. Regular camp fees apply.

For further information or to request an application please contact cnyasa@yahoo.com

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New Summer Camp Programs
CNY ASA at SAIL

CNY ASA is collaborating with the CNY Learning Disabilities Association's SAIL (Summer Adventures in Learning) program to offer participation opportunities for children ages 9-13 with a diagnosis of Autism Spectrum Disorder. This is a 6-week program, Tuesdays-Thursdays. The camp will run from July 12 - August 18. Class choices include Reading, Study Skills/Writing, Math, Social Awareness, Tech, Art, and Music.

Learn more at Summer Adventures in Learning. For further information, contact Dianne Pennings at (315)870-9464 or email Dpennings@ldacny.org. Registration applications are due by April 30, 2016. Registration does not guarantee participation. All applicants must be reviewed by CNY Learning Disabilities Association for consideration in this program.

This is a Pilot educational summer camp program available to children in need of additional supports. Special Education support staff will be funded by CNY ASA.

CNY ASA at Theater Arts Circus Camp

CNY ASA is collaborating with the Open Hand Theater's Circus Camp to offer participation opportunities for children ages 8-14 with a diagnosis of Autism Spectrum Disorder. This is a 2-week program, running from July 25 - August 5, Monday - Friday from 8:30-5. Campers will participate in dance, comedy, art, and balancing activities. Learn more at Open Hand Theater

For further information and registration, contact Andrea Wandersee at (315) 476-0466 or email andreawandersee@openhandtheater.org. Registration applications are due by April 30, 2016. Registration does not guarantee participation. All applicants must be reviewed by Open Hand Theater for consideration in this program.

This is a Pilot educational summer camp program available to children in need of additional supports. Special Education support staff will be funded by CNY ASA.


*These new collaborations are pilot programs. Availability of the programs this year will depend on the interest and number of applicants. If you are interested in either program please contact the appropriate agency no later than April 30, 2016 so that appropriate special education staff can be hired.

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iCan Shine Bike program

Once again, plans are well underway to host another amazing iCan Ride Bike camp during the 2016 summer! This summer, the camp will take place during the week of July 18-July 22.

The mission of iCan Ride is to teach individuals with disabilities to ride a conventional two-wheel bicycle and become lifelong independent riders. This achievement, in turn, creates a gateway of opportunity, helping them gain assurance and self-reliance in many other aspects of their lives.

This is an adaptive bicycling program. For many individuals with disabilities, mastering riding a bicycle can be a seemingly impossible task; however, with this camp, they can typically master it in less than a week’s time.

This camp opportunity is open to participants who are at least 8 years of age with a disability. In support of the CNY Autism Society’s mission, priority will be given to those campers with a diagnosis of an Autism Spectrum Disorder. If all spots are not filled, we will then open registration up to all campers with a disability. Camp sessions are 75 minutes in length Monday thru Friday; there are both daytime and evening sessions available.

Volunteers are also needed for this exciting opportunity to spot participants alongside the bikes... please consider getting involved, as it is such a rewarding an enriching experience for all!

Registration Form


To learn more about it at www.icanshine.org.

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Research Study Opportunities

1. Researchers at Syracuse University's Care Lab are looking for children with ASD and typically-developing children between the ages of 7-16 to participate in a study about how brains develop differently in typical children and those with ASD, particularly regarding how they process and put together information that they see, hear, and touch. Participants must be able to go to the CNY Medical Center on the Syracuse University Campus a few times, where they will complete tests measuring their thinking and language abilities, along with parents completing questionnaires (typically, 2-3 hours, including breaks). In another session, participants will complete computer-based tests, in which they will wear an electrode cap, with sensors measuring brain activity (typically, 2-3 hours, including breaks). The cap is safe, painless, and non-invasive. The testing can be completed in two visits but, based on individual pacing and possible need for follow-up testing, additional visits may be necessary. Child participants will be paid $10/hour for their participation, and they will be contributing to science!

To learn more, or get involved in this study:
Contact: Dr. Natalie Russo at (315) 443-2024 or email the Care Lab at carelab.syracuse@gmail.com.

2. Master's Candidate Jackie DeBartelo is working on her thesis; as part of her thesis, she is looking for parents of children between the ages 3-5 years with ASD, who also have a limited food variety in their diet. The study will run for 12 weeks in the parent's/child's home, and the treatment will be given by the parents. The study includes an interview, parent training, a parent-delivered treatment, and parent data collection.

For more information or to register to participate:
Contact: Jackie at (315)727-5087 or via email to jdebartelo@verizon.net.

3. The Virginia Tech Autism Clinic in Blacksburg, VA is recruiting parents of children with autism to participate in a long-distance research study. This study aims to better understand the experience of siblings and parents of individuals on the Autism Spectrum. De-identified results will be used in Ms. Hassenfeldt's dissertation and may be published.

Who: Parents with 1) a child with an Autism Spectrum Disorder (Autism, Asperger's, or PDD-NOS) and 2) another typically-developing child. Children must currently live in the same home, and sibling without ASD must attend a public or private school. Participating parent must be primary caregiver.

What: Complete surveys by mail (60 minutes). You will be compensated $15 for your time.

Contact: Tyler Hassenfeldt - thassen@vt.edu or (412) 600-8304

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2015 Autism Invitational Golf Tournament

Many, many thanks to Sergeant Jim Nightingale of the Camillus Police Department for organizing the 2nd annual Autism Invitational to benefit the CNY Autism Society on Sunday, September 13, at the Camillus Country Club. Thanks to Jim' s efforts, this was a tremendously successful and enjoyable event! In addition to Jim, we would like to thank all of our sponsors, raffle prize donors, and the golfers who participated. THANK YOU for your generous support!

Dinner Sponser:

  • Limelight Health

Hole Sponsers:

  • Asil's Pub
  • Auburn PBA
  • Award Winning Landscapes
  • Camillus PBA
  • Camillus Police Secretary Staff
  • Carl Richardson Blown Insulation & Painting
  • Coldwell Banker Camillus
  • Crete Scapes
  • Deli-Boy, Inc.
  • The Deskin Family
  • Dig Safely New York
  • Duncan Martial Arts Academy
  • Geddes PBA
  • Harold C. Brown
  • Key Bank
  • Kianka & Zollo CPA's, PC
  • John & Heather LaFratta
  • Mac Source Communications, Inc.
  • Majorpalooza, Inc.
  • Manlius PBA
  • Meridian IT
  • MONEY Federal Credit Union
  • Mowers Plus
  • Linda Mulherin, PGA Pro
  • NYSP Investigators Association
  • The O'Dell Family
  • OCSPA
  • Onondaga County Chapter of Chiefs of Police
  • Pies Guys
  • Plaza Liquor Store
  • Precision Lawn & Snow
  • Postetc
  • The Roofing Guys, Inc.
  • Solvay PBA
  • Syracuse PBA
  • SU Department of Public Safety
  • The Wildcat PizzaPub
  • The Wilmsmeyer Family

We also are most grateful to the many raffle prize donors, including Lisa Banac, Wildcat PizzaPub, Solace Healing, Antonio's, Applebee's, Asil's Pub, and Monro Muffler Brake & Service.

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World Autism Awareness Day

Syracuse participated in World Autism Awareness Day on April 2 and lit up in blue!

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Thank you to John's Auto Care!  

Many thanks to John's Auto Care for its continuous support of our organization and local autism community!

Many, many thanks to John's Auto Care (2045 Milton Ave. in Solvay), who recently presented CNY ASA with a $1,000 check from the sale proceeds from its coffee tumblers, which are now sold out! We are so grateful for John's continuous support of our organization and mission. Look up and like John's on Facebook!

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CNY Autism Society Logo Wear

Check out the latest and greatest in CNY Autism Society shirts, sweats, and sweatshirts. Adult and youth sizes are available.

Direct questions to Lisa Banac at cazlady@aol.com

Fill out the Order Form and follow instructions to place order.

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Help support CNY ASA by purchasing jewelry!

CNY ASA is excited to be amongst the charities benefiting from the Embrace the Difference Initiative. The Embrace the Difference symbol was created to promote acceptance, as well as to raise funds for organizations that work to make this vision a reality. A portion of the proceeds of each item purchased from the Embrace the Difference jewelry line can now be donated to our local chapter. Each purchase is accompanied by a donation card with a unique code, to be redeemed online, where the recipient can choose the participating charity of their choice to benefit. These items are produced and available exclusively at Reeds Jewelry Stores, one being located in DeWitt. To learn more about this program, visit www.embracethedifference.org

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CNY ASA Spectrum Support now has a Facebook Group!

http://www.facebook.com/home.php?sk=group_198025570207964

Post topics of interest and get real-time feedback from others in the CNY autism community! You must request to join the group, and unless you are a member, you cannot read or post in the group. Information is private from the general Facebook population.

Spectrum Support is a peer-to-peer service for parents, caregivers and professionals of individuals with Autism Spectrum Disorder, seeking support and peer guidance throughout their journey, now and into the future. You don't need to be a member of CNY ASA to be a member of this group, so please spread the word and join us!

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2016 Giving

Please remember CNY ASA as you plan your charitable giving. The Autism Society of America is a 501(c)(3) not-for-profit organization and CNY ASA is an associate member Chapter in good standing. Your donations are greatly appreciated and will help our local Chapter continue to make a positive impact in our community. Donations can be sent to: CNY ASA, 4465 E. Genesee St, PMB 252, DeWitt, NY 13214-2242.

In addition, if your company participates in United Way giving, please consider writing in CNY ASA as your organization of choice. Thank you!

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Additional Local Resources

For more information on our Central New York community and additional resources, visit www.autismsyracuse.com and www.featofcny.org.

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CNY ASA MISSION STATEMENT

The CNY ASA is committed to assisting families affected by autism, reaching out to the community to promote awareness, disseminate information and provide educational and recreational programming. The CNY ASA seeks to combine efforts with complementary organizations to positively impact the lives of individuals living with an autism spectrum disorder.

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